Prader-Willi Syndrome:
What is it?
It is the most common known genetic cause of obesity in babies and children. Normally children with this syndrome have a small stature, poor motor skills, weight gain, etc. Anyone can have it, meaning there is no difference on race or genre. The probability of a child having this syndrome is 1 in 15,000.

How does it occur?
There are different reasons why a child has it, but it has been genetically characterized as an abnormality on chromosome 15, meaning a gene mutation. Most cases happen because of a genetic error that occurs at, or near the time of conception. However, it can also be due to lack of several genes, normally being contributed by the father but prenatal testing can identify the genetic disorder.

Baby with facial characteristics of Prader Willi Syndrome

  • Poor motor skills
  • Low muscle tone
  • Mild mental retardation and learning disabilities
  • Chronic feeling of hunger
  • Low birth weight
  • Small hands and feet
  • Shaped eyes
  • Hypotonic at birth
  • Elongation of the face
  • Prominence on the nose
  • Excessive sleeping
  • Behavior abnormalities (impatience and anger) are common
  • Short stature
  • Weight gain
  • Underdeveloped sex organs
  • Maybe diabetes
  • Floppy newborn

  • The sooner a child is detected with this syndrome and gets treated, the easier things will be for the child.
  • Growth hormone injections may help to allow improved growth in the child.

USA PWS Association

Prader Willi Syndrome Association (USA):
  • The Package Of Hope (includes a variety of materials which will answer some questions about nutrition, medical concerns and the use of the growth hormone as a treatment)
  • Parent Mentoring

  • Extreme Makeover Home Edition: Starkweather family received a home from the show. Toen and Amy are parent of 9 year old boy Ethan who suffers from this disease. They have been the recent show to highlight this rare syndrome. The show was filmed in USA.
  • Can’t Stop Eating: Is was UK program which was aired on 2007 surrounding the life Joe and Tamara, two Prader Willi syndrome patients.
  • CSI (Crime Scene Investigation): Has a Prader Willi Syndrome patient acting on the episode “Dog Eat Dog which was aired on November 24, 2005 in the US.

Canadian Government:
  • Child Tax Benefit: Tax free monthly payment for children with this syndrome under 18 years
  • Child Disability Benefit: Tax free benefits to families whose child under 18 years have a severe prolonged impairment in mental or physical functions.
  • Universal Child Care Benefit: $100 monthly is paid to the families of these children under 6 years old to cover the cost of child care. It helps pay any child-care method such as nanny, baby-sitter, etc no matter the cost.

Works Cited:
"QUESTIONS AND ANSWERS ON PRADER-WILLI SYNDROME." Prader-Willi Association (USA). Web. 08 Mar. 2012. <>.
"About Prader-Willi Syndrome." Foundation for Prader-Willi Research |. Web. 08 Mar. 2012. <>.
"Prader-Willi Syndrome: MedlinePlus." U.S National Library of Medicine. U.S. National Library of Medicine. Web. 08 Mar. 2012. <>.
"Prader-Willi Association (USA)." Prader-Willi Association (USA). Web. 08 Mar. 2012. <>
"Sooper Articles." Disability Tax Benefits For Prader-willi Syndrome Patients. Web. 08 Mar. 2012. <>.
"Disability Benefit Claims For Those Suffering From the Prader Willi Syndrome." Prader Willi Syndrome: Disability Benefit Claims for Prader Willi Syndrome. Web. 08 Mar. 2012. <>.
"Prader-Willi Government Services and Programs." Prader-Willi Syndrome & Quality of Life. Web. 08 Mar. 2012. <>.
"Drugs Information OnlineDrugs and Diseases Reference Index." Prader-Willi Syndrome. Causes, Symptoms, Treatment Prader-Willi Syndrome. Web. 08 Mar. 2012. <>.
"Prader-Willi Syndrome - September 1, 2005 - American Family Physician." 301 Moved Permanently. Web. 08 Mar. 2012. <>.
"Television Shows Highlight Rare Prader Willi Syndrome." Emaxhealth: Daily Health News. Web. 08 Mar. 2012. <>.